Welcome to our Website

We hope that everyone will find it useful.

Its aims are:

to provide us with another means of keeping in touch with people who have neurological conditions and their carers and with the health and care professionals who commission and provide their services;

to support our efforts to improve neurological services and to press for the implementation of the quality standards recommended by the National Service Framework (NSF) for Long-term Neurological Conditions

The buttons at the top of this page will allow you to navigate easily around the site and access the information you need. The Contact Us button will take you to the page which has information about all the different ways you can make contact. Please send us your comments about neurological services you have experienced or about the website - it's new and we need to know how to improve it.

The Documents To Share button will give you direct access to our questionnaire, the latest ‘Neuro Voices’ Newsletter and the 'What you need to know about my condition' leaflet. The Useful Links button will give you access to other websites linked to implementation of the NSF for Long-term Neurological Conditions.

If you require information about a specific neurological condition, please use the button for Member Organisations - a click on their website address will take you straight to their website. If no Member organisation for your condition is listed, please feel free to send us an enquiry. Email Us

Website sponsored by Fentons Solicitors - www.fentons.co.uk

Website designed by HTP Solutions - www.htpsolutions.co.uk

Stop Press

Improving Neurological Services at Salford Royal Hospital

We have been chosen as one of only two patient organisations to work with Salford Royal to help improve the hospital services. We were invited to submit a "wish list" with three key priorities and after consultation with our Member Organisations we have proposed the following ;

1. Implement the "What You Need To Know About My Condition Leaflet" which aims to help meet patients needs when admitted to A & E or onto a non-specialised ward. These leaflets are downloadable from this website.

2. Appointment of a "Rare Conditions Specialist Nurse". We know that the services of Specialist Nurses are greatly valued by service users and carers, and are under resourced. We feel that this appointment would benefit people with those rarer conditions that currently do not have access to any Specialist Nurses.

3. Improve / expand Neuropsycholgy and counselling services. We have been told by service users and carers for many years about the lack of these services and how necessary they are in the treatment and care of patients with neurological conditions.

LET US KNOW WHAT YOU THINK ABOUT THIS PROPOSAL

It is important that we hear you views on this - please send your thoughts and comments via email (you can email direct from this website) or telephone 0161 742 7485.